The Alzheimer Prevention Trials Webstudy (APT Webstudy) is an online memory and thinking research tool aiming to accelerate the enrollment for Alzheimer’s clinical trials. This will be done by identifying and tracking individuals who may be at higher risk for developing Alzheimer’s, with the goal of providing members the opportunity to participate in clinical trials aimed at preventing dementia.
This six-month virtual training involves online assessments, training videos and discussion groups. The small group discussions are virtual, and topic centered. Two of the discussions are combined, small group, virtual discussions with the care partners and persons with the diagnosis. Five of the group discussions are separate, small group, virtual discussions; one for the care partners and one for the persons with a diagnosis.
CARE (Collaborative Approach for Asian Americans, Native Hawaiians and Pacific Islanders Research and Education) is creating a research registry of Asian Americans, Native Hawaiians and Pacific Islanders (AANHPI) who are interested in participating in various types of research, particularly those related to Alzheimer's disease and related dementias (ADRD), aging, caregiving, and other factors that affect health across the lifespan.
CarePRO Virtual Plus is a research project designed to assist individuals caring for someone with memory loss by providing education and skill-training sessions designed to reduce stress, enhance well-being, manage challenges, and plan for the future.
CarePRO-LTC was developed to address the ongoing needs for family and friends caring for individuals with dementia (Alzheimer’s disease and related dementias – ADRD) who have been placed in long-term care facilities. 42% of residents in assisted living communities have Alzheimer’s or other dementias, and 61% of nursing home residents have moderate or severe cognitive impairment. Furthermore, by age 80, 75% of people with Alzheimer’s dementia are admitted to a nursing home, compared with only 4% of the general population. The caregiving role and its related stress and distress does not necessarily disappear after the placement of a loved one with ADRD in long-term care.
EPIC: Living Alone is a research project designed to assist people with early-stage memory loss who are living alone in the community, by providing early-stage education and skill-training sessions designed to reduce stress, enhance well-being, manage challenges, and plan for the future.
EPIC II (Early-Stage Partners in Care) is a research project designed to assist people with early-stage memory loss and their care partners by providing early-stage related education and skill-training sessions designed to reduce stress, enhance well-being, manage challenges, and plan for the future. Researchers will gather feedback from individuals about their experience to continue to improve programs for early-stage memory loss.
The I-CARE2 Study is testing the effectiveness of a mobile, telehealth supported caregiver intervention aimed at providing support and training to caregivers to better manage behavioral and psychological symptoms of dementia.
Informal caregiving for persons with dementia (PWD) who are living at home typically involves multiple caregivers, but limited research has been done to examine the full scope of caregiving experienced by the many family members and/or friends involved in caregiving for PWD in the community. This novel study aims to characterize informal caregiving networks of PWD over time to help identify strategies for alleviating caregiver burden.
The Learning Skills Together study is a Zoom-delivered complex care training for family caregivers to persons living with dementia.