CarePRO Virtual Plus is a research project designed to assist individuals caring for someone with memory loss by providing education and skill-training sessions designed to reduce stress, enhance well-being, manage challenges, and plan for the future.
CarePRO-LTC was developed to address the ongoing needs for family and friends caring for individuals with dementia (Alzheimer’s disease and related dementias – ADRD) who have been placed in long-term care facilities. 42% of residents in assisted living communities have Alzheimer’s or other dementias, and 61% of nursing home residents have moderate or severe cognitive impairment. Furthermore, by age 80, 75% of people with Alzheimer’s dementia are admitted to a nursing home, compared with only 4% of the general population. The caregiving role and its related stress and distress does not necessarily disappear after the placement of a loved one with ADRD in long-term care.
Compass for Care is a nationwide study funded by the National Institutes of Health. The purpose of this study is to test online programs designed to assist caregivers. One program focuses on well-being and the other on safety.
Through this study, researchers hope to understand how social networks contribute to caregiver well-being and reduce burdens associated with caring for persons living with dementia.
EPIC II (Early-Stage Partners in Care) is a research project designed to assist people with early-stage memory loss and their care partners by providing early-stage related education and skill-training sessions designed to reduce stress, enhance well-being, manage challenges, and plan for the future. Researchers will gather feedback from individuals about their experience to continue to improve programs for early-stage memory loss.
The Learning from Family and Friends Who Helped with Dementia Care Study is seeking former dementia caregivers to learn from their experience with the hope of sharing successful strategies with others.
The Learning Skills Together study is a Zoom-delivered complex care training for family caregivers to persons living with dementia.
SLEEPMATE aims to find out whether a tailored cognitive behavioral therapy for insomnia intervention can improve sleep for both persons living with cognitive changes and their caregivers. Sleep disturbances are highly prevalent in these pairs, and they increase the risks for many psychological and cognitive health issues for both persons. This research will help to determine if the behavioral intervention plan provided is practical and useful for pairs experiencing sleep problems.
The Staying Connected through Communication Study is a survey for people who have noticed a change in their thinking and memory and are concerned about, or have a diagnosis of early stage dementia or mild cognitive impairment (MCI). This study also includes family members and/or friends of people with MCI or dementia.
The Couples Lived Experience Study is interested in the changes in the characteristics of relationships between members of couples over several years’ time, some, but not all of whom may be affected by decline in cognitive function.