Through this study, researchers hope to understand how social networks contribute to caregiver well-being and reduce burdens associated with caring for persons living with dementia.
Through this study, researchers hope to understand how social networks contribute to caregiver well-being and reduce burdens associated with caring for persons living with dementia.
EPIC: Living Alone is a research project designed to assist people with early-stage memory loss who are living alone in the community, by providing early-stage education and skill-training sessions designed to reduce stress, enhance well-being, manage challenges, and plan for the future.
EPIC II (Early-Stage Partners in Care) is a research project designed to assist people with early-stage memory loss and their care partners by providing early-stage related education and skill-training sessions designed to reduce stress, enhance well-being, manage challenges, and plan for the future. Researchers will gather feedback from individuals about their experience to continue to improve programs for early-stage memory loss.
This study is designed as a longitudinal study. It includes surveying current caregivers to assess if they witness lucid moments in a person with Alzheimer’s disease or related dementia. Assessments will be done monthly for one year.
The Learning from Family and Friends Who Helped with Dementia Care Study is seeking former dementia caregivers to learn from their experience with the hope of sharing successful strategies with others.
The Learning Skills Together study is a Zoom-delivered complex care training for family caregivers to persons living with dementia.
MindCrowd is a first-of-its-kind web-based memory study to identify cognitive performance outliers and to better understand their genetic differences. In Phase I, the goal is to have 1 million individuals, aged 18+, take the 10-minute online test and gather information for a more detailed Phase II study.
The National Institute of Aging (NIA) - Family Based Study - Early Onset Alzheimer’s Disease (FBS EOAD) is a study to understand the genetic factors influencing early-onset Alzheimer disease (EOAD) risk. The study includes individuals with EOAD, mild cognitive impairment, or other dementias. The study also recruits additional family members without dementia or memory problems that are willing to participate.
Tufts University Researchers created an online survey that explores the prevalence and impact of racial dynamics in clinical trials. The survey is anonymous and is designed to take 25 minutes to complete. Survey takers will be compensated $25 for successfully completing the survey.
SLEEPMATE aims to find out whether a tailored cognitive behavioral therapy for insomnia intervention can improve sleep for both persons living with cognitive changes and their caregivers. Sleep disturbances are highly prevalent in these pairs, and they increase the risks for many psychological and cognitive health issues for both persons. This research will help to determine if the behavioral intervention plan provided is practical and useful for pairs experiencing sleep problems.