| Alzheimer's Prevention Registry
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Thank You for Starting Your GeneMatch Registration. The First Step Is to Learn More About the Program.

Watch the following video presented by a genetic counselor or read the summary below.

What you need to know about GeneMatch

Can't watch the video? Read this summary instead.

GeneMatch’s Goal: Move Alzheimer’s research forward by helping scientists recruit participants who may qualify for prevention studies.

Alzheimer’s Disease and Research

  • Research studies are in constant need of participants.
  • Scientists do not know exactly what causes Alzheimer’s.
  • The APOE gene is our strongest genetic clue.

The APOE Gene

  • Each person has 2 copies of the APOE gene.
  • There are 3 types of the APOE gene: e2, e3, and e4.
  • e4 is a genetic risk factor for Alzheimer’s.
  • 1 or 2 copies of e4 raise a person’s risk of the disease.
  • Having the e4 gene does not mean that a person will definitely develop Alzheimer’s.
  • A person with no copies of e4 may still develop Alzheimer’s.

How GeneMatch Works

  • GeneMatch tests volunteers for their APOE type.
  • Step 1: Taking a cheek swab sample
    • We’ll mail you a test kit.
    • You’ll swab the inside of your cheek.
    • You’ll send the swab sample to our lab.
  • Step 2: Looking for study matches
    • GeneMatch will analyze your sample.
    • We’ll find out which APOE type you have.
    • GeneMatch will use your results to potentially match you with studies.

More about GeneMatch

  • The program is entirely free.
  • You will not learn your APOE results through GeneMatch.
  • GeneMatch may refer you to studies that will require you to learn your APOE test result.
  • You can choose not to participate in any study you are matched with.
  • We use multiple levels of security encryption.
  • Your information will not be added to your medical records.

Continue to Join GeneMatch

We'll ask you a few questions to check that you understood the video or summary.
(It's not a test. We'll provide the answers afterwards.)

Still have questions? Please contact us at GeneMatch@endALZnow.org.

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