The Alzheimer's Disease Health-Index - Online Survey

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The Alzheimer's Disease Health-Index - Online Survey



Details

  • Location: Online
Age:
18+
Duration:
15 minutes
Visits:
1 (online)
Click Here to Learn More

Next Steps

If you are living with Alzheimer’s disease, Mild Cognitive Impairment, or Dementia and wish to provide your insights about your experience with your disease, you may access the survey through this link.


If you are a caregiver for an individual with Alzheimer’s disease, Mild Cognitive Impairment, or Dementia and wish to provide your insights about their experience with their disease, you may access the survey through this link.

Eligibility Requirements

You may be eligible if you:

OR

About the Study:

University of Rochester researchers are looking to find out which symptoms have the greatest impact on the quality of life and disease burden of the Alzheimer's disease population. To do so, they are conducting a large study of Alzheimer's patients and caregivers of individuals with Alzheimer's. Study participation consists of completion of one online survey, which takes about 15 minutes to complete.

Purpose:

The purpose of this study is to assess which symptoms are of greatest burden to the Alzheimer's disease population.

What is Involved:

Eligible participants will be sent a survey link via email. The survey takes approximately 15 minutes to complete and asks questions about the physical, emotional, and social health of an individual living with Alzheimer's. 


Consent is obtained through a page at the beginning of the survey, participants are instructed to read the information letter, download it for their reference, and are encouraged to reach out to the study team with questions. 

Participants are free to not respond to any survey question, or simply close the survey window at any time which is made clear in the information letter. Once the participant completes the survey through the link and submit it, study activities are complete.

Click Here to Learn More

Next Steps

If you are living with Alzheimer’s disease, Mild Cognitive Impairment, or Dementia and wish to provide your insights about your experience with your disease, you may access the survey through this link.


If you are a caregiver for an individual with Alzheimer’s disease, Mild Cognitive Impairment, or Dementia and wish to provide your insights about their experience with their disease, you may access the survey through this link.