Study

Siblings Caring for Parents with Dementia - Virtual

Eligibility Requirements:

Participants are eligible to participate if they fit the following criteria:

  • Adult children who have a parent with Alzheimer's disease or a related dementia (ADRD).
  • Adult children are currently providing care for that parent.
  • Adult children have at least one living sibling who would be willing to participate in the study and who also cares for that parent.

Families are welcome to participate regardless of whether the parent with memory impairment resides in their own home, with other family members, in a residential facility, memory care unit, or some other setting.

About the Study:

University of Missouri researchers are conducting a study to better understand the role of family dynamics in the health and well-being of adult children who provide care to a parent with Alzheimer’s disease or related dementia (ADRD).

Purpose:

This study is currently recruiting two adult children within the same family to discuss their unique experiences of providing care to an older parent with Alzheimer’s disease or related dementia.


Insights from this study can help to shape future prevention and intervention efforts aimed at improving sibling interaction strategies and the overall health and well-being of adult children caring for older parents with memory impairment.

What is Involved:

Participation can happen completely from home. Participants (along with their sibling) will:

  • Begin by completing an online pre-survey (approximately 30 minutes)
  • Participate in a recorded video discussion with one of your siblings and a member of the research team (approx. 90 minutes). Following the interaction, you will be asked to complete a short post-survey (approximately 10 minutes) regarding your perceptions of your sibling's behaviors during the interaction.
  • Collect hair and saliva samples in your home, which you will mail back to the University of Missouri. Saliva samples are collected during the video discussion. Hair sample collection takes approximately 10-15 minutes to complete. Prior to the video discussion, you will complete two short surveys (20 minutes each) regarding your behaviors that may impact stress hormones (e.g. sleep patterns, medications, exercise).

Each participant can receive up to $95 in compensation. Participating in all parts of the study is voluntary.

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Age:
18+
Duration:
Participants typically complete all study components in a few weeks.
Visits:
Online
Study Type:
Caregiver Studies; Online Studies and Surveys; Studies for People without Memory Impairment

Study Site Locations: