GeneMatch: Connecting Alzheimer's Prevention Studies With Eligible Volunteers

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Details

Location:
Age: 50 to 90
Duration: Ongoing
Visits: Online

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Eligibility Requirements

Are 50 to 90 years old
Live in the United States
Do not have a diagnosis of cognitive impairment, such as mild cognitive impairment, Alzheimer's disease, or dementia

Enter Contact Info

Please provide your contact information and a member of the study team will contact you to follow up.

First Name *

Last Name *

Phone Number *

Email *

I have reviewed the eligibility requirements *

Are 50 to 90 years old
Live in the United States
Do not have a diagnosis of cognitive impairment, such as mild cognitive impairment, Alzheimer's disease, or dementia

I authorize the release of my contact information to the study team. *

I'm Not Ready

Thank you for your interest in this study. You're bringing us one step closer to our goal of ending Alzheimer's

Your contact information will be shared with the study team. If you have any questions, please contact the study team:

Medical University of South Carolina (MUSC)

Email: [email protected]

About the Study:

What is GeneMatch?

GeneMatch is a national program led by the Banner Alzheimer's Institute that:

Recruits participants for Alzheimer’s prevention studies.
Uses genetic testing (through free cheek swab kits) to match volunteers with research opportunities.
Advances Alzheimer’s research by helping scientists find enough qualified participants to launch new studies. 80% of research studies don’t complete enrollment on time, because they can’t recruit enough volunteers. We hope to prevent those delays.

What you need to know:

Your information will stay secure and confidential. Only GeneMatch will have access to your encrypted information. Your testing results will not be added to your medical records.
You can opt out of GeneMatch at any time. If we find a study opportunity that you qualify for, it’s entirely up to you whether or not you join. You are under no obligation to participate.
You will not necessarily learn your test results. Some studies may ask you to learn the results of your genetic testing; others will not.
For more information about the GeneMatch Program, check out our FAQs

Purpose:

The Alzheimer’s Prevention Registry created the GeneMatch program to help match people who are 50- 90 years old to research studies based on their genetic information.

What is Involved:

GeneMatch will provide you with a cheek swab kit to determine which copies of a gene (known as the APOE type allele) you have. You will not be told your APOE genotype as part of the GeneMatch Program.

GeneMatch may contact you about study opportunities or other based on your APOE genotype. Your interest and response to these study opportunities may be recorded and tracked by the GeneMatch team. You may be invited to complete online education modules and surveys.

Participants will be asked questions regarding the learning material and answers will be recorded and tracked by the GeneMatch team.