EPIC II - Early-Stage Partners in Care for Memory Loss and Dementia - Virtual

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EPIC II - Early-Stage Partners in Care for Memory Loss and Dementia - Virtual


Age:
18+
Duration:
1 year
Visits:
15 virtual "visits" (group and individual sessions)
Study Type:
Caregiver Studies
Online Studies and Surveys
Studies for People with Memory Impairment
Studies for People without Memory Impairment

Eligibility Requirements:

  • Individuals experiencing early-stage memory loss and their care partners (who are considered family)
  • Willingness and commitment to participate is required of both the individual with early-stage memory loss and their care partner
  • Care partner must be 18+ years old
  • Reside within the United States
  • Able and willing to participate online via Zoom videoconferencing
  • Fluency in English or Spanish 

About the Study:

Many early-stage dyads (early-stage individual and their care partner) appreciate the opportunity to learn new strategies and meet others like them. Participants will be encouraged to give information about this project to others who have been impacted by early-stage memory loss. The feedback gathered from speaking with early-stage dyads will be used to help improve the quality of early-stage education programs. 

Arizona State University researchers, in partnership with the Alzheimer’s Association and other community providers, will enroll up to 80 early-stage dyads residing in the United States who report one partner with early-stage memory loss.

Purpose:

The purpose of this study is to assist individuals with early-stage memory loss and their care partners by providing free early-stage related education and sessions designed to reduce stress, enhance well-being, and help manage challenges. Additionally, Arizona State University researchers will gather feedback from participants about their experience to continue to improve programs for early-stage memory loss.

What is Involved:

The study will be conducted remotely, via telephone and videoconferencing. It is open to anyone within the United States.


Participating in this program involves:

  • Meeting others with early-stage memory loss and their care partners
  • Attending six group sessions online (2.5 hours each) to learn strategies to help handle new situations, reduce stress, improve mood, communicate better with each other, and plan for the future
  • One 90-minute individualized, session online to address specific issues that may be unique to your situation
  • Five 2-hour confidential, in-home interviews that involve questions about your background, mood, and quality of life

Each participant will receive up to $95 for completing all follow-up

interviews, or $20-25 for each interview completed.


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