Caregiving During Crisis

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Caregiving During Crisis

4-5 months for any participant
3 online or phone interviews
Study Type:
Caregiver Studies
Online Studies and Surveys
Studies for People with Memory Impairment
Studies for People without Memory Impairment

Eligibility Requirements:

  • Family or informal caregiver of a person living with Alzheimer’s disease or a similar dementia illness
  • Able to speak and read English
  • Able to access an online program

About the Study:

The program is divided into three main parts. The first part provides guidance about infection control and prevention in the home and during excursions from the home. The second part provides guidance in navigating the healthcare system, dealing with strategies for communication and preparation for emergencies and providing roadmaps to the intricacies of the system. The final part of the program contains a brief guide to managing the day of a person living with a dementia illness.


The study seeks to test the preliminary efficacy of Caregiving During Crisis in improving caregivers’ well-being and sense of caregiving mastery.

What is Involved:

Participants will be enrolled in the online course which they will be able to access at will for a period of eight weeks. They will be expected to complete the course at their own pace and will be able to view the material when and as often as they wish. Prior to enrollment, participants will be asked to take part in a phone or online interview (about 30 minutes) to gather background information and information about their and their care recipient’s well-being. The second part of the interview will be repeated 10 and 18 weeks after course enrollment. About 20% of those involved will be asked to take part in another, semi-structured interview to provide feedback on ways the program might be improved to better meet their needs.