To begin: Learn more and sign up by visiting the website: www.aptwebstudy.org You will need to create an online portal which will ask you to provide some basic personal information. In addition, you'll be asked to complete online tests of your current memory and thinking functioning. These tests will help us to identify and track individuals who may be at higher risk for developing Alzheimer’s.
Next: Because we want to track your cognitive performance overtime, we ask that you come back approximately every 3 months to retake the memory and thinking tests. If there is a change in your memory and thinking, you will be alerted and may be invited to come in for a free, in-person evaluation at one of our clinical sites. The site staff would perform further testing including blood tests, brain scans and additional memory assessments, which will help us see if you have any brain changes known to be associated with developing Alzheimer's.
If eligible, you may then be provided the opportunity to enroll in a clinical trial aimed at preventing the cognitive decline associated with Alzheimer's.
Lastly: By joining the APT Webstudy, you will be given the scores of your memory tests, and you will be able to see any changes to your scores over time. You will also have access to Alzheimer's disease news and research updates explaining the latest findings and what they mean to you. Your information will always remain safe and private.
You will also be asked to review a consent form found on your online portal. Once you agree to participate, you will be asked to complete some brief questions about your life and medical history. This should take about 3 minutes to complete. Up next, you will be asked to complete computerized tests of your current memory and thinking abilities. These computerized tests will take about 20 minutes to complete.
Once you have completed these steps, this will be your first “visit” as a part of the APT Webstudy!
You will receive occasional reminder messages from the APT Webstudy, asking you to update your profile and to return for quarterly visits to retake the memory and thinking tests. These quarterly visits should take about 15 minutes to complete.
If we notice changes in your memory performance that show a possible increased risk for developing Alzheimer’s, you may be invited to visit a research clinic in your area that has partnered with the APT Webstudy to have additional testing performed.