GeneMatch - A Program of the Alzheimer's Prevention Registry - Online

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GeneMatch - A Program of the Alzheimer's Prevention Registry - Online

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Age:
55 to 75
Study Type:
Observational Studies
Online Studies and Surveys
Prevention Studies
Studies for People without Memory Impairment

Eligibility Requirements:

  • Are 55 to 75 years old
  • Live in the United States 
  • Do not have a diagnosis of cognitive impairment, such as mild cognitive impairment, Alzheimer's disease, or dementia

About the Study:

What is GeneMatch?

GeneMatch is a national program led by the Banner Alzheimer's Institute that:

  • Recruits participants for Alzheimer’s prevention studies.
  • Uses genetic testing (through free cheek swab kits) to match volunteers with research opportunities.
  • Advances Alzheimer’s research by helping scientists find enough qualified participants to launch new studies. 80% of research studies don’t complete enrollment on time, because they can’t recruit enough volunteers. We hope to prevent those delays.

What you need to know:

  • Your information will stay secure and confidential. Only GeneMatch will have access to your encrypted information. Your testing results will not be added to your medical records.
  • You can opt out of GeneMatch at any time. If we find a study opportunity that you qualify for, it’s entirely up to you whether or not you join. You are under no obligation to participate.
  • You will not necessarily learn your test results. Some studies may ask you to learn the results of your genetic testing; others will not.
  • For more information about the GeneMatch Program, check out our FAQs

Purpose:

The Alzheimer’s Prevention Registry created the GeneMatch program to help match people who are 55- 75 years old to research studies based on their genetic information.

What is Involved:

GeneMatch will provide you with a cheek swab kit to determine which copies of a gene (known as the APOE type allele) you have. You will not be told your APOE genotype as part of the GeneMatch Program.

GeneMatch may contact you about study opportunities or other based on your APOE genotype. Your interest and response to these study opportunities may be recorded and tracked by the GeneMatch team. You may be invited to complete online education modules and surveys.

Participants will be asked questions regarding the learning material and answers will be recorded and tracked by the GeneMatch team.

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