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The Alzheimer’s Prevention Registry: A Large Internet-Based Participant Recruitment Registry to Accelerate Referrals to Alzheimer’s- Focused Studies

Recruitment for Alzheimer’s disease (AD) focused studies, particularly prevention studies, is challenging due to the public’s lack of awareness about study opportunities coupled with studies’ inclusion and exclusion criteria, resulting in a high screen fail rate. 

A new type of study allows for clinical research participation closer to home

When COVID-19 struck,  clinical research studies, sometimes called clinical trials, were in a quandary. Study centers closed yet studies needed to continue. Thus, a different way of conducting research, called decentralized trials, was accelerated. The new model brings studies into communities close to participants’ homes, and sometimes even into their homes.

New study drug slowed cognitive decline in people with early Alzheimer’s

A Phase 3 study recently announced positive results in an amyloid-reducing drug trial. The results are welcome news for patients, families and the medical community who continue to search for new treatments to slow or prevent Alzheimer’s disease.

Alzheimer’s experts recommend strategies to increase diversity in studies

Alzheimer’s disease research studies need more participants and broader diversity. A panel of experts recently published new recommendations for enhancing recruitment of participants for Alzheimer’s studies. A delay in recruitment could jeopardize future preventive and therapeutic discoveries.

Groundbreaking prevention study will positively impact future Alzheimer’s research

At the Alzheimer’s Association International Conference in August 2022, the precedent-setting Alzheimer’s Prevention Initiative study based in Colombia reported the study drug did not slow cognitive decline in participants with a rare genetic mutation that causes early onset Alzheimer’s disease. Learn more about how the outcome of this study will help guide future studies.

First of several Alzheimer’s studies to report results this summer

Beginning in July, several Alzheimer’s disease trials will release their study results. Will this be the year a potential treatment or prevention therapy is discovered? Dr. Alireza Atri from the Banner Sun Health Research Institute offers his thoughts on what could be next for Alzheimer’s research.

How are autism and Alzheimer’s related?

Recent studies suggest a link between Alzheimer’s disease and autism spectrum disorder. Scientists are asking the question: As children diagnosed with autism age into adulthood, how will their diagnosis impact their memory and thinking skills? With hundreds of thousands of elderly adults diagnosed with autism by 2030, now is the time to study this potential association.

Report: Sustaining healthy brain behaviors requires individual and community commitment

In its annual report, the Global Council on Brain Health and AARP brought together experts from around the world to discuss how society can do more to promote activities to support healthy brains as we age. Read what they have to say about how individuals and communities can motivate people to maintain brain-healthy lifestyles. 

Bringing Alzheimer’s prevention research to you for 10 years

This year the Alzheimer’s Prevention Registry turns 10!  We’ve achieved many milestones over the past decade thanks to our members who continue to express interest in Alzheimer’s-focused research and share the Registry with their family and friends. Read more about all we’ve accomplished in our first 10 years and what we have planned for our next decade.

The importance of family caregiver studies in Alzheimer’s

Family caregivers are the backbone of long-term care for people with Alzheimer’s disease and other dementias. Research studies are now focused on how to support caregivers throughout the course of a person’s disease, exploring tools for stress management, the wide range of caregiver responsibilities and much more.