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The Alzheimer’s Prevention Registry: A Large Internet-Based Participant Recruitment Registry to Accelerate Referrals to Alzheimer’s- Focused Studies

Recruitment for Alzheimer’s disease (AD) focused studies, particularly prevention studies, is challenging due to the public’s lack of awareness about study opportunities coupled with studies’ inclusion and exclusion criteria, resulting in a high screen fail rate. 

Alzheimer’s experts recommend strategies to increase diversity in studies

Alzheimer’s disease research studies need more participants and broader diversity. A panel of experts recently published new recommendations for enhancing recruitment of participants for Alzheimer’s studies. A delay in recruitment could jeopardize future preventive and therapeutic discoveries.

Groundbreaking prevention study will positively impact future Alzheimer’s research

At the Alzheimer’s Association International Conference in August 2022, the precedent-setting Alzheimer’s Prevention Initiative study based in Colombia reported the study drug did not slow cognitive decline in participants with a rare genetic mutation that causes early onset Alzheimer’s disease. Learn more about how the outcome of this study will help guide future studies.

First of several Alzheimer’s studies to report results this summer

Beginning in July, several Alzheimer’s disease trials will release their study results. Will this be the year a potential treatment or prevention therapy is discovered? Dr. Alireza Atri from the Banner Sun Health Research Institute offers his thoughts on what could be next for Alzheimer’s research.

How are autism and Alzheimer’s related?

Recent studies suggest a link between Alzheimer’s disease and autism spectrum disorder. Scientists are asking the question: As children diagnosed with autism age into adulthood, how will their diagnosis impact their memory and thinking skills? With hundreds of thousands of elderly adults diagnosed with autism by 2030, now is the time to study this potential association.

Report: Sustaining healthy brain behaviors requires individual and community commitment

In its annual report, the Global Council on Brain Health and AARP brought together experts from around the world to discuss how society can do more to promote activities to support healthy brains as we age. Read what they have to say about how individuals and communities can motivate people to maintain brain-healthy lifestyles. 

Bringing Alzheimer’s prevention research to you for 10 years

This year the Alzheimer’s Prevention Registry turns 10!  We’ve achieved many milestones over the past decade thanks to our members who continue to express interest in Alzheimer’s-focused research and share the Registry with their family and friends. Read more about all we’ve accomplished in our first 10 years and what we have planned for our next decade.

The importance of family caregiver studies in Alzheimer’s

Family caregivers are the backbone of long-term care for people with Alzheimer’s disease and other dementias. Research studies are now focused on how to support caregivers throughout the course of a person’s disease, exploring tools for stress management, the wide range of caregiver responsibilities and much more.

New project launches to study Alzheimer’s disease prevention in people with Down syndrome

Approximately 75% of adults with Down syndrome develop Alzheimer’s disease by the age of 65. Researchers are now creating more studies to explore the link between the two and plan to bring the latest therapies into clinical trials for this patient population.

What are clinical trials and how do they work?

New drugs and medical devices are tested for safety and effectiveness in several phases of clinical trials. But how exactly does a clinical trial work? And what is the difference between Phase I and Phase II? This month we explore the inner workings of clinical trials and their role in testing new medical treatments.