Caregiving | Alzheimer's Prevention Registry

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Caregiving

Tips for communicating with and caring for Alzheimer's patients

The impact of Alzheimer's is felt around the country. According to the Alzheimer's Association, more than 5 million Americans live with the disease and it is the sixth leading cause of death in the country.

Alzheimer’s Staggering $259B Cost Could Break Medicare

The cost of providing care for Americans with Alzheimer’s disease has hit $259 billion–more than a quarter of a trillion dollars–as costs mount to treat more aging baby boomers entering long-term care facilities, according to a new report released by the Alzheimer’s Association. 

We're Partnering With The Mighty!

We're thrilled to announce a new partnership that will bring our resources in front of The Mighty's wide-reaching readership. We will now have a new and growing home on The Mighty and appear on many stories on the site.

September Beacon: Maintaining Connections

As someone enters the moderate stages of Alzheimer’s disease/related dementia, a new set of situations begin to emerge as outlined in the July and August 2016 Beacon

newsletters. There is continued need to keep the person with dementia (PWD) engaged and connected but family caregivers recognize the increasing difficulty of doing so.

This dual challenge, in turn, adds to the growing list of responsibilities for the caregiver- who, more than ever, needs time to disengage from their role as caregiver. It is vital that caregivers stay socially connected and participate in activities that bring joy to themselves. This constant increase of demands placed on the caregiver during the moderate stage can become overwhelming and result in social isolation. The good news is, there are strategies that can help and supports that can be put into place to help both the PWD and their caregiver stay engaged and connected – both together and separately.

Ask the Expert: GeneMatch

Dear Dr. Roberts,

My father recently enrolled in GeneMatch, a new Alzheimer’s Prevention Registry program. He did a cheek swab and is waiting to be “matched” with appropriate studies. What are the next steps for my father? How can he get the results of the genetic screening so he’ll know if he carries the gene that increases the potential for Alzheimer’s disease?

Ask the Expert: Transparent Studies

Dear Dr. Grill,

My Mom is interested in taking part in a “transparent” preclinical trial on Alzheimer’s disease. As part of the study, she would undergo Positron Emission Tomography, also called a PET scan. Because this is a transparent study, I understand she’ll receive the results of this PET scan. What kind of support should I seek for my Mom if the results show she has amyloid in her brain, a biomarker for Alzheimer’s? Are transparent studies becoming more common for Alzheimer’s disease?​

Early Alzheimer's disease: Living Day to Day

In this month’s Beacon we are going to focus on some of the basics of planning care on a day to day basis. Implementing these techniques one bit at a time has been shown to decrease problem behaviors and enhance quality of life.

Alzheimer's Caregivers give up food, medication, education, report says

With the rising number of people with Alzheimer’s, the burden on caregivers is growing. Mike and Patsy Boggs share their story of how Alzheimer’s is affecting their family and the hefty cost of the disease. Dr. Pierre Tariot explains that there needs to be a new national standard of care. 

Big Financial Costs Are Part Of Alzheimer's Toll On Families

Dr. Pierre Tariot weighs in on the financial impact of Alzheimer’s in NPR’s coverage of the latest Alzheimer's Association Facts & Figures Report.

Big Financial Costs Are Part Of Alzheimer's Toll On Families

Dr. Pierre Tariot weighs in on the financial impact of Alzheimer’s in NPR’s coverage of the latest Alzheimer's Association Facts & Figures Report.