One of the benefits of the Registry is the opportunity to learn about potential research study opportunities for which you or a loved one may be eligible. These trials will come in many forms, and each member can decide if a trial is of interest to them.
These studies could be brief surveys used to screen for potential participants in future research opportunities or to help shape the design of future trials. Additional surveys may be used to address relevant research topics, such as the prevalence of risk factors in the Registry community or members’ attitudes toward genetic testing.
Individuals who enroll in the Registry are under no obligation to take part in prevention studies or other research trials. You may be notified of opportunities to learn more about pending research, but participation in any study is entirely up to you. Even if you express initial interest in a study, you are under no obligation to participate.